My name is Rachel Stretch and I have a Glioblastoma Multiforme Grade 4 malignant brain tumour which is terminal. I am still here alive and kicking beating my prognosis of 2 years to live.
PLEASE help me to help others with life threatening and terminal illnesses by sponsoring me to go to the Arctic and take part in this challenge of driving my own team of huskies, mushing over 200kms through frozen landscapes for 6 days. This task is not an easy one as it will be below freezing point, so very cold and a serious test of endurance.
FUNDS RAISED BY RACHEL WILL HELP THE CHILDREN WE SUPPORT
NICHOLAS BAMFORTH HAS CEREBRAL PALSY - THERE IS NO CURE FOR CEREBRAL PALSY BUT YOU CAN HELP
MAKE LIFE EASIER FOR NICHOLAS:
2016 the 3rd anniversary of Nicholas's SDR surgery. We will be forever grateful to SDR and Dr TS Park and the team at St Louis Childrens Hospital. Dr Park is a fantastic doctor who does change lives! SDR was definitely the right decision for Nicholas at a time when his mobility was rapidly deteriorating and he was in constant pain. Cerebral Palsy had riddled his body with spasticity. We will ...never forget his reactions following SDR, normal things like being able to wriggle his toes, "his body feeling loose and not tight". The stiffness, and tightness in the muscles had been removed.
We are aware SDR is not a miracle cure that rids the body of Cerebral palsy: it rids the body of spasticity enabling the now spastic free muscles to be worked and built up with physiotherapy, stretches, exercise and general activity and therefore improve strength and mobility. This is the hard bit we know; but it has been harder than we imagined. Nicholas experienced another knee injury seven weeks ago and has not been able to walk since. He is in pain and is immobile! We have a fantastic physio who is working with Nicholas and he is making some progress. We are so upset that we cannot celebrate this anniversary with fantastic news about how well Nicholas is progressing. Right now we feel that this is the way his life is going to be! Nicholas is still a happy positive boy with an amazing support network. He does have low days but will never give up and his determination is amazing. He is an inspiration to us all! We do question why he has struggled so much when reading about other SDR families who post fantastic positive posts on here which are amazing to read! Are his muscles so weak that they cannot cope with the physio and activity he is doing or is he simply unlucky? Should he accept a sedate lifestyle when hopefully he is mobile again? If asked would we go through the past three years again then the answer is yes. We simply could not have let the spasticity take over his body. We will embrace each day, week and month and work with Nicholas to achieve the best quality of life possible.
Help Nicholas and his family raise the funds needed for ongoing treatment:
FUTURE FOR MARLEY
Marley is a 4 year old boy who suffers with Cerebral Palsy and Quadriplegia. The condition means Marley is unable to walk or... stand without intervention, he will remain like this for the rest of his life.
BUT THERE IS HOPE There’s a procedure called Selective Dorsal Rhizotomy which would fix Marley’s legs enabling him to stand for the first time in his life and with the assistance of a K-Frame he will even be able to walk! Marley has been accepted for the SDR Operation!
TO COVER COSTS WE NEED TO RAISE APPROX £58,000
TO SOME WALKING IS NO MORE THAN INCONVIENCE WHIST FOR OTHERS ITS SIMPLY A DREAM!